We are a 501(c)(3) non-profit organization dedicated to supporting, empowering, and advocating for individuals and families living with FA. We provide resources and raise awareness to improve the quality of life for those affected by this rare genetic disorder.
Friedreich’s Ataxia is a rare life-shortening, genetic, neuromuscular disease that causes progressive damage to the nervous system. It typically presents as difficulty with balance and loos of coordination. Other common symptoms can include serious heart conditions, fatigue, scoliosis, dysarthria (slowness and slurring of speech), hearing and vision loss, and diabetes.
Families For Friedreich's Ataxia Foundation was founded in the spring of 2024 to support, empower, and advocate for individuals and families living with Friedreich's Ataxia by providing financial assistance and bringing awareness to FA.
Our next event is located inf Ft. Wayne, Indiana. We will be hosting a golf outing to raise funds for our FA Families. Join us out on the couse!
Our first event was an amazing success. Thank you to all who attended, donated ,or volunteered. It was a wonderful night of dinner, drinks, lively music, raffles, and a silent auction.
-FA Parents
Together we can change a life!
Your business or organization can make a lasting impact for many.
Donate in many ways: online, check, in-kind, or a gift donation.
Our golf outing will be held this September in Fort Wayne, Indiana. Join us for 18 holes, lunch, games, and a silent auction as we Tee up to support families living with FA.
We would love your support at our next event or fundraiser. Lets connect!
Please reach us at familiesforfa@gmail.com if you cannot find an answer to your question.
The mission of Families for Friedreich's Ataxia Foundation is to support, empower, and advocate for individuals and families living with Friedreich's Ataxia.
Applications for aid are reviewed on a case by case basis at quarterly board meetings. Once reviewed, applicatant will be notified of the board's decision regarding aid via contact information provided on the application form.
At this time you can not designate your donation to a specific program or service offered by Families for Friedreich's Ataxia Foundation.
Families For FA is searchable as “Families for Friedreich’s Ataxia Foundation”.
Our Tax ID # is 99-1370900
Learn more about upcoming events, fundraisers, and to receive our newsletter.
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